The Better to See You With

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Big news at our house! O got glasses this week! The process took about a month from exam to fitting and now to actually having the glasses (they arrived Monday). And even though my kid has only been wearing glasses for just days I have already encountered a whole new world of questions. You know when you are expecting a baby and everyone asks you the same handful of questions: “When are you due? How are you feeling? Do you know what you’re having?”And so on. And it’s all with great intent that people ask… I mean they are truly interested. But it gets old. Same thing once you have the baby: “How old? What’s her name? How are you sleeping?”

And here I am. With a toddler in glasses. New questions have arisen. And again, all with good intention. O can’t exactly answer them except to point her her glasses and say “dasses” so I politely field the questions. To be clear, these questions aren’t offensive or bothersome. But my repeating the same reel of information kind of is bothersome… Especially if I’m just trying to pick up milk at the store. Like I’m already squeezing that into my day. I wish I had more time to answer your questions but I. Just. Need. Milk. This is really only annoying to me though. So instead of being irritated I’m taking a route that I’m going to call “Advocacy”. I’m not a doctor, nurse or any sort of expert. I’m a parent. But I’m empowered with lots of information and experiences that others are curious about. I plan on answering every question to the best of my knowledge and directing other parents in ways I’ve found helpful myself. But I am only familiar with my own daughter’s condition (farsighted with accommodative esotropia) and I’m not a doctor so don’t be diagnosing your kid based on some crazy lady’s blog post. Especially when said crazy lady usually posts about her love for paint colors. Why am I posting this then? Well for starters this is sort of my therapy. I’ll admit this process has been a bit stressful (especially the beginning) so typing it out and sharing our story is helpful. Also, in my research I found lots of explanation from doctors, medical organizations and so on but I couldn’t find many accounts directly from parents. So maybe someone else can stumble upon this in their google search of “toddlers with glasses”. It takes a village and so I share.

How did you know she needs glasses?
Short answer- We didn’t. Long answer- All babies are born farsighted (can see well far but poorly near) and can only see in black and white for a period as well. Over time the farsightedness becomes less and less. During the process some kids may exhibit eye crossing. O did this in pictures or when we got close to her face. I thought she was learning to focus when this happened. It’s normal until about 12-18 months. By then kids should have mostly outgrown it. Our pediatrician was on the ball and monitoring her crossing since it still seemed to be pretty frequent. But when they haven’t outgrown it then its time to see a Pediatric Ophthalmologist. So we did.

What is the exam like? How can they tell what she can and can’t see at such a young age?
Children’s exams vary based on their age. Older kids (3?) maybe have to tell what shape, or animal they see. But for O (20 months) she can’t tell us much. So the exam consists of the staff (the doctor and up to two nurses) getting her to focus on something in the distance. Our office has a stuffed dog at the corner of the room that barks when they flip a switch. While she is looking at that the doctor is shining lights in her eyes and studying her. She gets dilation gel from the pharmacy that we have to give her twice a day for a few days before the appointment since kids usually cry out the drops. Then I have to hold her on my lap with her arms up against her ears so that her head is almost “locked” in between her arms. Then Hubby holds her legs from kicking or flipping herself over. And the nurse reclines the chair (like at the dentist) to be completely parallel with the floor. She holds O’s eyes open while the doc stands over us trying to look into her eyes with different lenses shouting out numbers to another nurse over O’s cries. The staff is professional, patient and comforting. Still, she hates it. As a parent it’s torture. I takes everything in me not to cry. But I’m doing this for her. The big picture wins.

What is her vision issue/prescription? What does that mean?
She is farsighted with accommodative esotropia. Google that and you’ll find that it means she sees well at a distance but her vision close up is poor. She sees a Monet painting everywhere she goes. The accommodative esotropia part means that her brain recognizes that her eye (in this case her left eye has the worse farsightedness) is giving bad information. The left eye sees worse close up so if O is working on a puzzle, looking at a book or looking at her lunch plate that’s when her eye gives the bad information. The brain “turns off” her left eye (to “accommodate” her good vision coming from the right eye) when it gives bad information. When it turns the eye off the muscle that keeps the eye straight relaxes and it causes her eye to cross or turn inward toward her nose. See the pic at the top of this post? Her left eye is turned in. Over time that muscle becomes weak from not being used as much and crossing continues or in some cases becomes worse or even lazy (Amblyopia). Her prescription is +4.50 in the left eye and +4.00 in the right. This is a view through her glasses.

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Will the glasses fix her accommodative esotropia?
Hopefully. The idea is that if we can get the “bad” (left) eye to give good information by having a prescription to help her see better then the brain won’t turn the eye off. And if the brain doesn’t turn the eye off then the muscle will be used more and become stronger. So we if we fix the farsightedness we can fix the accommodative esotropia (crossing) and prevent amblyopia (lazy eye). If the glasses don’t do the trick then patching is an option. Patching the right eye (her stronger eye) will strengthen the left eye muscles so her eye can see better and be straight when doing so.

How can you tell if they are really helping her or working? On the first day I noticed O looking longer at books, differently at the dog and finishing puzzles that she used to dismantle and never attempt to put together. We Facetimed Hubby at work, something we have done many times before. But this time I noticed O making faces in the camera. It had never occurred to me that she had never been able to see herself! She is less clumsy, more confident on steps. She used to tap her foot to find the edge of a step before lowering herself down the step. Now she does steps like a pro. She is interested in things she never cared for before like the iPad, tv, the alphabet. The kid can see better by all accounts. Imagine the whole world she is seeing now compared to what she used to see. We are literally changing our kid’s world. In the long run we will know of they are really working if her left eye stops crossing in. If not we will begin to patch.

What does it mean to patch ?
Patching is when one eye is covered either with a fabric patch over the glasses or a sticky bandaid type patch directly on the face over the eye. The strong eye is patched to give the weaker eye an opportunity to strengthen itself.

When will you know if the glasses are enough or when it’s time to patch?
Every kid is different. We made an appointment to return to the Pediatric Ophthalmologist in 3 months. We will do whatever he advises based on that exam.

What if the patch doesn’t help?
Surgery is an option. I don’t know very much about that yet because we aren’t there. Hubby had the same thing when he was little and did have the surgery with huge success. Actually his ophthalmologist is also O’s doctor all these years later. He might just know what he’s doing.

What’s the difference between an Ophthalmologist and an Optometrist?
Good one. I had to learn that one myself! An optometrist can help you get a prescription, check for common vision issues and conditions. They hold a Doctor of Optometry degree and are licensed and credentialed. Ophthalmologists are medical doctors (with M.D.s and often other letters after their names) who can do everything optometrists do as well as perform surgery, Lasik, help with eye and muscle development/therapy and so on. Read more here.

Is she supposed to wear them all day long? Yes. If her eyes are open the she should be wearing them. She should only take them off for nap, bath and bed.

Does she keep them on? How do you get her to keep them on?
Once we got the right fit for her little face she started keeping them on pretty well. Most kids realize how much better they can see with glasses and so they leave them on out of necessity. Occasionally if the glasses get jumbled (from a fall for example) she will jut take them off since she can’t quite fix them herself. She also takes them off in a fit just as another kid might kick or throw something. But for the most part they stay on all day. As for getting the right fit for her little head it wasn’t easy. O is petite to begin with… she measures at 20% in head circumference at her check ups. We got her rectangular Miraflex brand glasses that come with an elastic band to go around the back of the head. It took a few tries but I stitched a few stitches into the band to make it fit more snug. That way the glasses stayed up on her face since she’s so small that her nose doesn’t even have a bridge to hold up glasses. Since they don’t slide and are now more comfortable she keeps them on.

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How long will she have to wear glasses? Her whole life or just through school? Again, every kid is different. She will be wearing these for at least a few years. We will have to get new frames and probably update the prescription. But she will need glasses for a while. Maybe for everything always or maybe just for visually strenuous tasks (like computers). We will know more as time goes on.

My kid has never had an exam when should we start that? Actually, your kid probably has been examined. Pediatricians conduct basic eye exams at every check up. For smaller kids they look into the eyes with lights or ask them to follow a finger while they move it. Older kids might have to identify shapes or letters at a distance. Although most Pediatricians do this, its not an actual vision exam. They are usually looking for obvious abnormalities and issues. I have just learned that children should be seen by an Optometrist as early as 6 months old. I don’t recall that being in any of my baby-prep books, nor do I recall my Pediatrician reminding me to do so (as he has already for dental visits). Some preschools and kindergartens do similar exams (and audiology exams too) and are looking for red flags. If you have a concern ask your pediatrician for an exam or a referral. Red flags to look for could be strain, headaches, claiming eyes are tired or hurting, obvious improper identification of letters or shapes, stumbling or tripping, uncoordinated steps. At any rate, it doesn’t hurt to ask and early detection is always good.

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Thanks for reading my novel. And for “listening”. I’ll probably be posting regularly about O’s glasses, progress and all around adorableness. For now O doesn’t seem to mind the glasses or the attention they bring her. Today we took the boys to the dentist and the entire staff poured over her while the boys got cleanings. She ate it all up. Can you handle this cuteness?!?!???

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22 thoughts on “The Better to See You With

  1. Both my sister and I had amblyopia and had successful surgery. I had to wear a clear red eye patch on my left eye and color with a red pen to strengthen my right eye. And this was a loooooong time ago 🙂 We had Nick and Dylan checked repeatedly by a pediatric ophthalmologist but really lucked out and both have perfect vision. Regardless, both my sister and I overcame the muscle issues and mine are farsightedness and astigmatism now. Hopefully O will outgrow this…the great thing Is that you were so on top of this and got her treatment right away 🙂

    • Debbie- Thanks! Isn’t the medical filed amazing? They fixed that with surgery. I’m constantly blown away by their abilities. I am glad my Ped was on it too. I wear glasses but never experienced all of these other things. Eye patches come in cool patterns with hello kitty or hearts printed on them etc. Glasses are way more stylish now too. We are so blessed that this is a fairly easy to treat and minor condition. When we went to Children’s to fit her for glasses we met kids who had cataracts, or wore contact lenses with glasses. Those are much more involved issues. I always count my blessings when we leave there. Also blessed to have vision insurance. Without that the glasses were nearly $500. We spent less than $80 and got a few bells and whistles as well as the service plan (so necessary with kids).

    • I enjoyed reading your post as I have a daughter that has been in glasses since 15 months. My husband is an Optometrist, so when he is out with us I can easily field the questions to him, but when I’m on my own I feel your pain.
      I was a little concerned at some of the information here in your post. All infants need to be seen at 6 months of age by an Optometrist. A Pediatrician isn’t trained and they do not give complete eye exams. The InfantSee prgram is a great resource for parents with infants.

      • Thanks! I’m still learning all this. I wish eye exams were treated the way people treat the first visit to the dentist. I think most people don’t take their kids until they have a concern or a teacher says something.

      • Also- I will be updating that post with info like what you’ve shared. I’m also compiling a few resources right now… You know, online forums, support groups and credible medical sources. Let me know if there are anymore you recommend. I want to soak up as much info as I can.

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  6. Great story! And O looks fabulous on her glasses. So glad she does well with them. Both my kids wear Miraflex glasses for farsightedness with a accommodative esotropia. My son (now 3.5) had the surgery when he was a little over 2 yrs old. It was very successful. His eyes are beautifully aligned now. He still wears glasses & frankly I love him in his glasses. My daughter (now almost 2 yrs) started wearing them about 5 months ago (same color as your little O too) for the same exact diagnosis. We’re wondering if she’ll need the surgery like my son did.
    It was so nice to read your post & find real parents who are going thru it. I wish you & O the very best of luck. Sounds like she’s in good hands with your husband’s success.

    • Thank you! This was cathartic to write… And I searched high and low for something similar by a real parent too. If you are on Facebook look for the “little four eyes” group. Full of people like us. Thanks for the feedback!

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