Adventures in Ophthalmology 

Yesterday O had a check up with her Ophthalmologist to assess how she is progressing with her newest prescription (updated in September to R+4.50 and L +7.00 and a new diagnosis of slight astigmatism).

O is usually well behaved at appointments. She was particularly cooperative yesterday and it makes it so much easier on me, as my emotions are always running high at the Ophthalmologist’s office. Since she’s older and so communicative (I wonder where she gets that?) they now have her identify shapes and letters projected onto a mirror from a screen on the back wall (as shown below). O is seeing much better with her new prescription and is closer to 20/20 vision than ever! The doc says her muscles are responding appropriately and that she can see even further down the chart to smaller lines she’s never seen before! He looked at me and told me it was “the absolute best case scenario for her.”

O does need to patch 4 hours each day again. Her left eye is crossing minimally and we need to keep things balanced for her. The good news is that her brain is using both eyes almost evenly! Hubby and I are thrilled and very proud of our girl!

New Sights: An Update on O’s Eyes

O just had a check up at the Ophthalmologist this week. As you may recall from my original vision post, O is seen by the same doctor who treated my husband 30+ years ago. The doctor just moved to a new office not far from the old one… but we felt like we were in a whole new world. The new office was a stark contrast from the old school office we were used too. But I was pleasantly surprised to see that our doc kept his old equipment along with adding all kinds of new technology. Below is his classic set of equipment, followed by the new stuff.     O did a little better at identifying the shapes this time…. because they were actual shapes. His old tests were of a classic desktop telephone, a duck and a stick figure on a bike. Most kids didn’t even know what the phone was! But I also think the thinner lines in these illustrations simplified it for O. O brought along her doctor kit. She often pretends to be looking in our eyes. I’m glad she’s so interested! And she continues to be very cooperative and well behaved for the doc and nurse staff.

Her exam showed that her lense prescription is doing its job and her muscles are responding well to patching. We were told to continue patching the right eye 3 hours each day and an appointment was scheduled for later in the summer. Over all, all is well!

What’s new with O – Fall 2014

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It’s been a while since I’ve done an update on our sweet little O. It’s true what they say about time flying. We’ve been having a blast with O and all of her toddler adventures. And I’ve just realized she’s not so little anymore.

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We headed to the pumpkin patch as a family last week and she could have cared less about the pumpkins. I practically had to make her sit for a pumpkin picture. She was all about the hayride and pony rides. And she also attended a birthday party with pony rides. Those cowgirl boots are getting worn in. Get this: she wants a pony for Christmas. Too bad that doesn’t fit in Santa’s sleigh (or his budget).

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She’s looking less and less like a toddler and more like a kid. O also now has quite the fashion sense… this season she’s big on side ponytails, vests, jeggings, Toms, cowboy boots, rain boots, and bracelets galore! You know, if you take your fashion cues from almost-3-year-olds.

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She always puts her shoes right next to mine. And on rain days she begs to go “puddle jumping” on the way to the bus stop. Being two and a half is so much fun!

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O has also taken up painting. She’s always liked coloring and drawing. Up until now we used Magnadoodles, chalk boards, computer paper and notebooks for art. On a recent trip to Ikea we found a little set of watercolors complete with brushes and water cups. I also grabbed a roll of paper. She’s been a painter ever since. Great for patching time too!

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This was the first year O was really into Halloween. For the past two years we had chosen her costume (bumble bee and Elmo). This year she knew she wanted to be Elsa (from the movie Frozen … in case you live in a hole) for months. I found a costume in early September at Target for a cool $20 and I jumped all over it… because as I suspected all the other Elsa dresses I saw later were double that price a few weeks later. Due to the weather, we incorporated a fur vest into Elsa’s wardrobe. I think it worked out. You can’t tell in the pictures, but she insisted on wearing her cowboy boots under that dress. Of course, I was Batman… er, um… Batmom?

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She made it to a dozen or so houses… that’s a lot of walking for those little legs. O had more fun handing out our candy and treats. You may recall that she has moderate food allergies (milk and eggs) so we participated in the Teal Pumpkin Project that I blogged about earlier this month. We handed out spider rings, vampire teeth and (practically every allergy free) Dum Dum suckers.

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In addition to choosing her own costume, O is old enough to tell us what kind of face she’d like on her pumpkin. She chose Hello Kitty. It was a bit of a challenge to carve, but I forgot how much I love to carve pumpkins until we started!

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As a special surprise we treated O to a trip to Disney on Ice. We didn’t tell her until we arrived at the show and she was so excited. Below is her “excited” face.

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Hubby and I had fun too. I was impressed with the show! Worth every penny. Even this $12 foam crown. It came with cotton candy… which she hated and Mommy and Daddy devoured.

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O also went to the Ophthalmologist last month. We learned that her prescription increased to +5.00 in the right eye and +5.50 in the left eye. We weren’t really surprised by the increase because she’s growing and changing. She was so small (18 months) at her last major exam that it can be hard to get completely accurate measurements. We’ve ordered he new frames and lenses and are awaiting their arrival. She will still be patching 3 hours a day (over the right eye) for the Accomadative Esotropia and Ambloyopia. She was being silly in the mirror when we were ordering her new glasses.

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xo, Hilda

 

Painting While Patching

We finally have more updates on O’s Ophthalmology appointments to share! You may recall that she is farsighted (Rx: L +4.5 & R +4.00) with accommodative esotropia and amblyopia in her left eye. If you’re new to my blog you can read more about O’s condition and how we figured it out here, here and here.

We hadn’t had an appointment since March so we couldn’t wait to see how things were shaping up for her. We went last week to see what kind of progress she was making with her patching. We had been patching “as needed” an hour or two on each eye, depending which one seemed to have “weaker” muscles demonstrated by intermittent crossing of the weak eye. There is no real formula on how to determine how long a kid needs to patch… so even the doctors use educated guesses and trial and error to see what is working for her. The doc seemed to think she was responding very well to patching and is showing progress (verses regression or no change) in her strength. So good news! We continue daily patching for 3 hours on her right eye (strengthening her left).

Also, the exams are getting easier as time goes on. She is more cooperative, knows what to expect and is super excited to go to our appointments. But that last one may be based on the fact that we promise donuts. Hey, you do what works! Her appointments are easier for us too. Since she is less resistant and there is less crying, squirming and holding her down, then we don’t feel stressed or guilty about the situation. I personally am less anxious about the entire vision situation for her. In part because I’ve educated myself on her individual condition, possible outcomes and treatments and such. It’s much less unknown and so I’ve really had an easier time with it lately. I also credit a facebook group called “Little Four Eyes” for helping me through. It’s an online support group of sorts for parents of children in glasses. It has been a great place to compare notes, swap stories and pictures and find deals on patches. I also have found great gratitude for our situation. O has a considerably minor and easy to treat condition. Some of these kids are dealing with much more difficult or unusual diagnoses. Cataracts, glaucoma, strabismus, and so many things I’d never even heard of. Some have been through multiple surgeries already in their short little lives. I’ve realized how simple her condition is to treat and am so thankful we have the means to help her overcome it. We are blessed with great insurance and the added bonus of vision insurance, access to amazing professionals as well as consistent paychecks to help us pay for it all.

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We’ve been embracing patch time with O. She’s moved on from her recent playdoh obsession to now loving paint. She’s been watching me paint forever and I recently gave her brushes that she pretends to paint with all the time. My sister came over the other day and brought along paint and canvas. O was in heaven! We stripped her down (since this is acrylic), spotted several coordinating colors on each one and let her go to town. This way there wouldn’t be a muddy mix of colors since we kept them in the same family (pink, blue, purple and white) and we did it again with blue, green, yellow and white.

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We loved watching her paint. She was concentrated and intent with each stroke. I could tell she was taking pride in her work.

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She made two masterpieces. Once for our house. I think it may even end up on the gallery wall! And another for her grandparents.

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O had so much fun that she even stopped caring about being messy! Usually she has a paper towel by her side during every meal and craft. But today she let loose and jumped right in. Below is her forearm, complete with gold bangle bracelet and paint. We call her “Baby GotRocks,” you know!

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Anything For A Donut

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O just had her first appointment at the Ophthalmologist in a while (since November I think). This was actually only her third visit. If you recall, her first trip was quite an ordeal as far as cooperation goes. But we learned lots, got her script and ordered the glasses. I wrote a post on all that we had learned about O’s prescription, condition and what exactly happens during the vision examination of a toddler here. Her second trip was to evaluate the effectiveness of her prescription and explore the possibility of patching (which we were instructed to do 4 hours per day on the right eye). After a few weeks of patching, we found that her other eye crossed and were told to scale down our patching hours and alternate eyes. That happened nearly in tandem with the free replacement of O’s Miraflex frames due to significant fading.  I wrote about both here.

At this appointment we were there to see how well her left eye had been responding to the patching of the right eye. O had been patching since November and we had been told over the phone (not an actual visit with the doctor) to scale down and alternate patching. By the time we visited the Ophthalmologist this week, we had taken patching to one hour per day on the right eye (to exercise the left) and patched the left eye only on an as-needed basis. The doctor was thrilled with the results! O’s left eye had responded extremely well to patching and we will continue to patch the right eye 1 hour daily with occasional patching on the left. He did say to increase the occasional patching on the left eye to 2-3 hours when we do decide its needed so that it’s just a little more effective. This is all good news! Basically, the brain is choosing to use the left eye almost as often as the right and has been learning not to favor one eye over another. This way, both eyes are being used fairly evenly and are therefore working together with each other as well as the brain. Because the brain is choosing to use both eyes so often, then the muscles that keep O’s eyes straight are working hard and staying strong. Since those muscles are being used then they aren’t getting weak! So it is unlikely that O will have a “lazy eye” or Amblyopia. See, this is not just a vision issue… It’s a vision, muscular and neurological thing. And we need to get that trifecta working together in perfect harmony. Um, kind of like juggling… or a symphony.

By the way, my kid was completely cooperative and happy during every moment of the appointment. The nurses were shocked at her impeccable behavior and I was proud. I kind of felt like a magician. Wanna know how we got O to be a perfect angel for all of this? Well, since our past appointments were tough on her as well as us, we started prepping her a few days ahead. We talked about going to the doctor and all the things we will do there. She showed me how she would put her glasses on/off to let him see her eyes and I talked about how she might get to see a flashlight so he can look in her eyes. She was especially excited when we reminded her of “the puppy”… our doc has a stuffed animal in the corner that barks and moves when he flips a switch. It is used to get kids to look in a particular direction and focus on things at a distance while he examines. But we were worried that practicing just wasn’t enough. Considering that each time we had been there before, not only had O cried but so had I; we needed motivation. Let me tell you something about our little O: she’s quite determined. Tell her she can’t do something? She will. Remind her that she can have dessert after those green beans are gone and she’ll shove all of them in her mouth at once. What does O love more than ANYTHING in the whole wide world? More than m&m’s, more than puppies, more than shoes, more than going to school to get Z? Donuts. We may or may not have bribed our kid with donuts. With the simple mention of donuts she actually couldn’t wait to get to her appointment. And as soon as we walked in, she told the nursing staff, “I go to the donut store”… and each time the doctor was finished with one portion of the exam she would say, “All done! Go to donut store now please?” and she didn’t forget. She didn’t let us forget either. We talked about donuts non-stop, on repeat for the whole exam, all through check out, into the car and while buckling. We had a 10-15 minute drive to our old neighborhood in town where we get coffee and see our friends. All the way there, “I so excited! Go to donut store!” All. The. Way. There. There is only one place this family buys donuts. Busken Bakery is our jam. The headquarters/commissary is just a block from our old coffee shop. O knew where we were as soon as we pulled in. She clapped with excitement and fought to get out of her carseat faster than I could unbuckle her. The absolute best thing in the whole world is witnessing the look of shear joy on your own child’s face. In fact, it makes me forget the 9 months of morning sickness and 3 days of labor… for like a minute. When we walked into Busken, O radiated sheer happiness and politely ordered “My donut, please,” as if the woman behind the counter knew how long she had been waiting for it and how well behaved and brave she had been this morning. Like that lady had been waiting all day long for her to walk in a reward her with that heavenly donut. She even got her own bag for her very own donut. Pssst- We only let her eat half today after telling her it was gone. So there is more in the bag to surprise her with tomorrow.

At any rate, we are proud of our little O for being so good about keeping her glasses on and even asking for them every morning when she wakes up. She is a trooper when she has the patch on and a tough cookie when we take it off (like a band-aid… ouch!). And boy, oh boy does she rock those little pink rectangular frames… everyone thinks she’s a little fashionista with her skinny jeans, hipster frames and ponytail!

I’ll leave you with this picture of O napping during Z’s soccer practice the other day. How funny is her squishy face? She slept like that for an hour in a noisy gym. I enjoyed every moment of her on my chest.

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Posh Patching

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O had another appointment at her Pediatric Ophthalmologist to check up on how her glasses are working for her. You can read my post about O, her condition and our experiences in Pediatric Opthalmology here. The doctor was impressed with how well she has adjusted to her glasses and even more impressed with how much she embraces her “dasses” as she calls them. Not only does she leave them on, but she will adjust them for comfort or wiggle them on her face to be funny. My favorite part of the appointment was when the doctor was using a light to guide her eyes in different directions and O was opening her mouth saying “Ahhh!”. She went to the dentist with me the other day and the hygienist had her sit and watch my cleaning while she explained each step so that next time O can have a smooth first dentist visit. At the dentist’s visit, we taught her to open her mouth wide and say “Ahhh”… so she obviously was paying attention. Too bad she applied it at the wrong doctor’s office but it made me laugh!

The results of the visit were fairly simple. First, her glasses are working well for her. She seems comfortable with them and the prescription seems right. Also, her left eye is responding to the prescription (meaning its not crossing as much when she is wearing her glasses).  Second, there is room for improvement. Her left eye is the weak eye (with the +4.50 prescription and the esotropia/crossing) and could still use some strengthening. So the doctor wants her to “patch” for 4 hours a day until our next appointment in March. Patching means she will have her strong eye (in her case the right eye) covered with either a cloth patch over the glasses or a sticky band-aid style patch directly over the eye. Covering the strong eye will give the weak eye (her left) an opportunity to strengthen itself and encourage the brain to utilize the weaker left eye.

Fortunately, O has been cooperative wearing the patch. Although we’ve only done it twice so far, she hasn’t attempted to rip it off. The first time I put it on her I tried to make it fun. She likes to play with my make up brushes so while we were playing with the brushes and tickling each others cheeks, I took out the sticky patch and presented it to her. I put it on over her eye while we were looking in the mirror. I let her touch it and fiddle with it for a moment and then I slipped her glasses on so she could see herself in the mirror. Her response was “Oh, woo woo!” which in our house means “So pretty!” …For me I felt like that was a success. She was physically comfortable AND she felt like she looked pretty. Don’t get me wrong, her being pretty isn’t what is important. What is important is that she didn’t feel like she looks different than her usual self or funny. It doesn’t hurt that the sticky patches are printed with fun designs so it’s like a pretty new shirt for her. You can see an example in the photo above. I did give a feeble attempt to have her try the fabric patch over the glasses but she repeatedly just tore her glasses off. To me, thats a fail. It seemed easier to get her used to the patch and then put the glasses on over it. I also think that the sticky patch is less irritating because it stays still on the face, whereas the fabric one moves a little as she smiles, talks and plays so she feels it against her skin more.

Overall things are going well for her and I’ve been told by several professionals and friends who have had similar experiences that realizing her condition so early and treating at such young age is a huge advantage.

The Better to See You With

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Big news at our house! O got glasses this week! The process took about a month from exam to fitting and now to actually having the glasses (they arrived Monday). And even though my kid has only been wearing glasses for just days I have already encountered a whole new world of questions. You know when you are expecting a baby and everyone asks you the same handful of questions: “When are you due? How are you feeling? Do you know what you’re having?”And so on. And it’s all with great intent that people ask… I mean they are truly interested. But it gets old. Same thing once you have the baby: “How old? What’s her name? How are you sleeping?”

And here I am. With a toddler in glasses. New questions have arisen. And again, all with good intention. O can’t exactly answer them except to point her her glasses and say “dasses” so I politely field the questions. To be clear, these questions aren’t offensive or bothersome. But my repeating the same reel of information kind of is bothersome… Especially if I’m just trying to pick up milk at the store. Like I’m already squeezing that into my day. I wish I had more time to answer your questions but I. Just. Need. Milk. This is really only annoying to me though. So instead of being irritated I’m taking a route that I’m going to call “Advocacy”. I’m not a doctor, nurse or any sort of expert. I’m a parent. But I’m empowered with lots of information and experiences that others are curious about. I plan on answering every question to the best of my knowledge and directing other parents in ways I’ve found helpful myself. But I am only familiar with my own daughter’s condition (farsighted with accommodative esotropia) and I’m not a doctor so don’t be diagnosing your kid based on some crazy lady’s blog post. Especially when said crazy lady usually posts about her love for paint colors. Why am I posting this then? Well for starters this is sort of my therapy. I’ll admit this process has been a bit stressful (especially the beginning) so typing it out and sharing our story is helpful. Also, in my research I found lots of explanation from doctors, medical organizations and so on but I couldn’t find many accounts directly from parents. So maybe someone else can stumble upon this in their google search of “toddlers with glasses”. It takes a village and so I share.

How did you know she needs glasses?
Short answer- We didn’t. Long answer- All babies are born farsighted (can see well far but poorly near) and can only see in black and white for a period as well. Over time the farsightedness becomes less and less. During the process some kids may exhibit eye crossing. O did this in pictures or when we got close to her face. I thought she was learning to focus when this happened. It’s normal until about 12-18 months. By then kids should have mostly outgrown it. Our pediatrician was on the ball and monitoring her crossing since it still seemed to be pretty frequent. But when they haven’t outgrown it then its time to see a Pediatric Ophthalmologist. So we did.

What is the exam like? How can they tell what she can and can’t see at such a young age?
Children’s exams vary based on their age. Older kids (3?) maybe have to tell what shape, or animal they see. But for O (20 months) she can’t tell us much. So the exam consists of the staff (the doctor and up to two nurses) getting her to focus on something in the distance. Our office has a stuffed dog at the corner of the room that barks when they flip a switch. While she is looking at that the doctor is shining lights in her eyes and studying her. She gets dilation gel from the pharmacy that we have to give her twice a day for a few days before the appointment since kids usually cry out the drops. Then I have to hold her on my lap with her arms up against her ears so that her head is almost “locked” in between her arms. Then Hubby holds her legs from kicking or flipping herself over. And the nurse reclines the chair (like at the dentist) to be completely parallel with the floor. She holds O’s eyes open while the doc stands over us trying to look into her eyes with different lenses shouting out numbers to another nurse over O’s cries. The staff is professional, patient and comforting. Still, she hates it. As a parent it’s torture. I takes everything in me not to cry. But I’m doing this for her. The big picture wins.

What is her vision issue/prescription? What does that mean?
She is farsighted with accommodative esotropia. Google that and you’ll find that it means she sees well at a distance but her vision close up is poor. She sees a Monet painting everywhere she goes. The accommodative esotropia part means that her brain recognizes that her eye (in this case her left eye has the worse farsightedness) is giving bad information. The left eye sees worse close up so if O is working on a puzzle, looking at a book or looking at her lunch plate that’s when her eye gives the bad information. The brain “turns off” her left eye (to “accommodate” her good vision coming from the right eye) when it gives bad information. When it turns the eye off the muscle that keeps the eye straight relaxes and it causes her eye to cross or turn inward toward her nose. See the pic at the top of this post? Her left eye is turned in. Over time that muscle becomes weak from not being used as much and crossing continues or in some cases becomes worse or even lazy (Amblyopia). Her prescription is +4.50 in the left eye and +4.00 in the right. This is a view through her glasses.

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Will the glasses fix her accommodative esotropia?
Hopefully. The idea is that if we can get the “bad” (left) eye to give good information by having a prescription to help her see better then the brain won’t turn the eye off. And if the brain doesn’t turn the eye off then the muscle will be used more and become stronger. So we if we fix the farsightedness we can fix the accommodative esotropia (crossing) and prevent amblyopia (lazy eye). If the glasses don’t do the trick then patching is an option. Patching the right eye (her stronger eye) will strengthen the left eye muscles so her eye can see better and be straight when doing so.

How can you tell if they are really helping her or working? On the first day I noticed O looking longer at books, differently at the dog and finishing puzzles that she used to dismantle and never attempt to put together. We Facetimed Hubby at work, something we have done many times before. But this time I noticed O making faces in the camera. It had never occurred to me that she had never been able to see herself! She is less clumsy, more confident on steps. She used to tap her foot to find the edge of a step before lowering herself down the step. Now she does steps like a pro. She is interested in things she never cared for before like the iPad, tv, the alphabet. The kid can see better by all accounts. Imagine the whole world she is seeing now compared to what she used to see. We are literally changing our kid’s world. In the long run we will know of they are really working if her left eye stops crossing in. If not we will begin to patch.

What does it mean to patch ?
Patching is when one eye is covered either with a fabric patch over the glasses or a sticky bandaid type patch directly on the face over the eye. The strong eye is patched to give the weaker eye an opportunity to strengthen itself.

When will you know if the glasses are enough or when it’s time to patch?
Every kid is different. We made an appointment to return to the Pediatric Ophthalmologist in 3 months. We will do whatever he advises based on that exam.

What if the patch doesn’t help?
Surgery is an option. I don’t know very much about that yet because we aren’t there. Hubby had the same thing when he was little and did have the surgery with huge success. Actually his ophthalmologist is also O’s doctor all these years later. He might just know what he’s doing.

What’s the difference between an Ophthalmologist and an Optometrist?
Good one. I had to learn that one myself! An optometrist can help you get a prescription, check for common vision issues and conditions. They hold a Doctor of Optometry degree and are licensed and credentialed. Ophthalmologists are medical doctors (with M.D.s and often other letters after their names) who can do everything optometrists do as well as perform surgery, Lasik, help with eye and muscle development/therapy and so on. Read more here.

Is she supposed to wear them all day long? Yes. If her eyes are open the she should be wearing them. She should only take them off for nap, bath and bed.

Does she keep them on? How do you get her to keep them on?
Once we got the right fit for her little face she started keeping them on pretty well. Most kids realize how much better they can see with glasses and so they leave them on out of necessity. Occasionally if the glasses get jumbled (from a fall for example) she will jut take them off since she can’t quite fix them herself. She also takes them off in a fit just as another kid might kick or throw something. But for the most part they stay on all day. As for getting the right fit for her little head it wasn’t easy. O is petite to begin with… she measures at 20% in head circumference at her check ups. We got her rectangular Miraflex brand glasses that come with an elastic band to go around the back of the head. It took a few tries but I stitched a few stitches into the band to make it fit more snug. That way the glasses stayed up on her face since she’s so small that her nose doesn’t even have a bridge to hold up glasses. Since they don’t slide and are now more comfortable she keeps them on.

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How long will she have to wear glasses? Her whole life or just through school? Again, every kid is different. She will be wearing these for at least a few years. We will have to get new frames and probably update the prescription. But she will need glasses for a while. Maybe for everything always or maybe just for visually strenuous tasks (like computers). We will know more as time goes on.

My kid has never had an exam when should we start that? Actually, your kid probably has been examined. Pediatricians conduct basic eye exams at every check up. For smaller kids they look into the eyes with lights or ask them to follow a finger while they move it. Older kids might have to identify shapes or letters at a distance. Although most Pediatricians do this, its not an actual vision exam. They are usually looking for obvious abnormalities and issues. I have just learned that children should be seen by an Optometrist as early as 6 months old. I don’t recall that being in any of my baby-prep books, nor do I recall my Pediatrician reminding me to do so (as he has already for dental visits). Some preschools and kindergartens do similar exams (and audiology exams too) and are looking for red flags. If you have a concern ask your pediatrician for an exam or a referral. Red flags to look for could be strain, headaches, claiming eyes are tired or hurting, obvious improper identification of letters or shapes, stumbling or tripping, uncoordinated steps. At any rate, it doesn’t hurt to ask and early detection is always good.

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Thanks for reading my novel. And for “listening”. I’ll probably be posting regularly about O’s glasses, progress and all around adorableness. For now O doesn’t seem to mind the glasses or the attention they bring her. Today we took the boys to the dentist and the entire staff poured over her while the boys got cleanings. She ate it all up. Can you handle this cuteness?!?!???

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